Meet the team
The BPA is largely run by a committee of dedicated volunteers who have porphyria, or are relatives of people with porphyria. The short bios below tell you a little about each of our committee members.
Our committee is separated into an executive committee and an ordinary committee, plus a board of trustees.
Together the committee and trustees are responsible for ensuring that the aims and objectives of the charity are fulfilled to the best potential and that the charity operates efficiently and according to the constitution. They are collectively responsible for the overall management and organisation of the BPA, and must do their best to ensure the financial stability of the charity.