International organisations

The following organisations have websites in English:

The American Porphyria Foundation has an extensive website, including a section for medical staff:

The Australian Porphyria Association is at

The following sites have web in their own language:

Swedish Porphyria Association:

Norway: Norsk Porfyriforening:

Porphyria Association Denmark:

Italian Porphyria Association:

Dutch EPP Foundation:

EPP Germany (who also cover other types of porphyria)

Porphyria Association of Poland:

France: Association Française des Malades Atteints de Porphyries:

Spain: Asociación Española de Porfiria: